So — It’s been a while friends. I only have about 20 minutes, but wanted to catch everyone up on my recent health battle: SHINGLES!!
I was diagnosed about 2 months ago.
It all started with a few bumps across my bra line I thought were bug bites.
In about a week, those bumps turned into a widespread rash across my ribs/torso.
Horrible burning pain, itchy and all the dreadful symptoms that go along with shingles like:
Lethargy, sharp pains, dull aches that felt as if someone was punching me in the ribs repeatedly.
I also had this feeling of being electrocuted that went from the tips of my toes to the top of my head, waking me up with a zap about every other hour — hence the lethargy.
My doc put me on anti-virals and gave me some pain meds and numbing lotion for the rash and sent me on my way.
I saw my Rheumy about it and he also took me off all my Psoriatic Arthritis meds, which now includes methotrexate and Enbrel, a combination that for once FINALLY was working for my day-to-day pain.
Now, fast forward about a month and the rash is beginning to fade, I’m done with my anti-virals and haven’t taken any immunosuppressants. The zapping has faded, but I’m still dealing with a lot of the dull aches.
I was told by my doctor and
Rheumy that after a couple of weeks of being done with the anti-virals and being off my meds, I should go ahead and fork out the $300 for the Shingles vaccination (which isn’t covered by insurance since I’m not over 60-years-old).
So, I did.
I got a minor reaction on my arm that went away at about the same rate as my other rash, which had spread by the way, to three other parts of my torso and back.
Then … I go through a somewhat stressful move about a week or two later.
I wake up in my new place, which by the way already is feeling like home for me and my boys!!! … and whaddya know, I have a NEW rash that appeared over all the old bruises.
Now — yesterday — the pain is BACK!!
Horrible aching in my ribs and torso.
And … this morning I found three new rashes.
I guess I’m just wondering if every time I go through something stressfull I’m going to have to deal with this pain.
It’s awful. Hard to get up in the mornings!! Painful, burning … all the symptoms are back and feel as if they have doubled.
I keep on truckin though.
I’m going to work and trying to ignore the sharp, stabbing pains in my ribs.
I also am on my second round of anti-virals … AND … flaring in my joints horribly since I’m off all my meds for the Psoriatic Arthritis.
Has anyone out there ever been through Shingles at a young age (or any age for that matter) and also had autoimmune diseases?
If so, how many outbreaks have you had since and WHEN did it END!!??
Not sure how much longer I can take this 😦
Thanks for listening to my rant and feel free to comment. I need all the suggestions I can get!
Love you all and talk to you again soon!!