I don’t have the photos from my allergic reaction three years ago available to post today, but I will post (some of them) soon.
I do have some random iPhone pics I have taken over the last few weeks whenever I spot a flare or something else going on … mostly because I want to document it here. So — here are a few of those — and I do plan to continue to try to photograph flares and other reactions and post them here.
I will try to find the photos from my reaction and blog those soon too.
So. This pic is from today (May 18, 2012). My finger was swollen, tight and sore for several days last week — and now its rough, dry and peeling. You can’t really see it — but the circular spot that’s pretty evident is not the only place it’s peeling … it goes almost all the way to my palm along the finger.
Here is my finger when the swelling began – about a week ago
Here is a pic of some swelling in my wrist. I never know whether it’s the Lupus, MCTD or Palindromic Rheumatism that causes the flare. I also never know where it will hit (elbows, knees, fingers, wrists, limbs, etc.) or how long it will last. This flare only lasted a few hours. Sometimes they last days and require a doctor’s visit. I typically use hot/cold compresses, ibuprofen, and wrist guards/knee wraps for support. The only way to describe a major flare is it’s dibilitating. Feels like its broken. Thank God this was a minor one.
Here I am in my new “Lupus Sucks” T-shirt. The concept is that Lupus “sucks” because it sucks your energy, sucks your health, sucks your finances, sucks your time — and so on.
Here’s a magnet I bought that Warns of what NOT to say to me, lol!!!
After all that negative — please let me encourage you!
There is always still lightwith an autoimmune disease!
There are still strong bonds of friendship!
There is always room for new relationships with autoimmune diseases!
There will always be work (maybe not paid) but none the less — and yes, I did interview Vince Dooley for the paper I work for — and YES — he is as sweet as he looks!
There will always be room for silliness with an autoimmune disease!
There is still room for exercise
Remember – your sickness DOES NOT define you, YOU define you!
And always remember :
“Storms make oaks take roots.”
An update: While I was writing this blog my doctor called. Thus far all my blood work came back normal. Still waiting on the platelet test. Will let you know as soon as I hear something.Until next time friends. xoxoxo ~allie