This has been a crazy week. I’ve wanted to blog everyday, but life just kept getting in the way. Even now I only have about 20 minutes before I’m off to another meeting to cover for work.
To catch you all up a bit — my blood work came back fairly normal. There were a few “off” or “flagged” levels — like my basophils (total) and some other immune deficiencies, but nothing to be too concerned about according to ma rheumy. So – that’s good news.
I’m not gonna lie — this week has been tough though. Every day has been a struggle to get out of bed. My joints have been off-the-wall-crazy hurting. And not just the usual (my elbows, knees and wrists) — the little joints in my fingers too.
I’ve recently become more and more aware about my diagnosis. Basically, this last bout of sickness or “flare” caused me to do some pretty intense research. I didn’t like what I found per se … but I have found some other people who also suffer from MCTD, Lupus and other autoimmune diseases. It felt nice to read some of their blogs and forums and see that I’m not alone.
One of the best and most descriptive websites was The Spoon Theory written by Christine Miserandino If you ever wonder what it feels like to wake up sick — and know that its chronic — read her site and you may begin to at least grasp it.
I was also excited to find a MCTD website/awareness page. You can view that HERE!!! I have already been in touch with Abigail, who runs the site. Sweet girl and although she’s in London — I hope to help her get the word out about MCTD, which is a pretty rare and horrible disease.
Oh – and I also got the chance to walk for Lupus. Here I am doing that!!! 😀
Thanks to one of my best friends — me and my boys got to walk with more than 7,000 people (in Atlanta) who raised in excess of $300,000 to help fight Lupus! And in the midst of all the purple and butterflies – me, Brad and my two boys walked. It felt really good to actually get out and do something about it. I’m through sitting around and sulking about all my diseases. I’m ready to fight now. And if it’s just blogging about it – then so be it. But I don’t think that’s where it will end.
In fact, I think this is just the beginning …