I finally went in for my medical tests yesterday. The long awaited CT scan and echo cardiogram — along with multiple vials of blood.
I got two missed calls from my doctor yesterday evening and by the time I called back, the office was closed.
Needless to say, this made me a little anxious.
Then, they called me with partial results this morning.
Turns out the tests concealed the fact that I’m Wonder Woman. I’d have to be considering the fact that I not only get up and out of the bed every morning with a multitude of autoimmune diseases … but I continue to work full time, go to school part time and be a single mom to my teen and tween boys. Or maybe I’m just crazy. I may feel like the Wonder Woman in the picture above … but more than likely I look like this one …
or maybe it’s that I feel like I should be the one on top, but more days than none, I feel like the above version.
Anyways – back to the doctor’s update.
This morning the nurse calls to tell me some good news, some not so good news, and then some non news. Basically, the CT scan of my lungs came back normal, which is excellent news. I continue to struggle with my breathing though and still have a nasty cough.
She then proceeds to tell me that although It has not turned into pulmonary hypertension, the echocardiogram showed elevated pressure in the right side of my heart. When I asked her what that means — she didn’t have an answer for me. She basically said that they are still waiting on my lab work and would be back in touch with me after reviewing that.
I did do a little research on my own, because if I have learned anything from all of this … it’s that you have to take your health into your own hands. Research your diagnosis and symptoms. They call medicine a “practice” for a reason.
in laymens terms … heart failure.
Cor Pulmonale is heart failure brought on by long term high blood pressure. Funny thing is — i have never had high blood pressure that I know of. I’m typically about 120/80 or 118/80. The other day I had my blood pressure taken for an event I was covering at work and it was 120/90 (which is really pretty high for me). Then again, yesterday it was 120/85.
Not sure what’s going on there. Wondering if all the medications they have me on might be causing it. Does anyone know whether or not Hydroxychloroquine can cause elevated blood pressure?
So – the “non” report has to do with my blood work, which hasn’t come back in yet.
And here I am playing the waiting game again! I’m guessing my Rheumy will call me once she gets the blood work and fill me in on this heart stuff. I have to admit, it does scare me a little. I do know that MCTD often causes problems in the right side of the heart — leading to heart failure. I’m hoping that this was caught soon enough to somehow reverse the damage or at least keep it at bay.
I’ve guess in the interim I will just continue to float on … like Modest Mouse. I mean, what else am I gonna do, right.
Until next time friends!!!