You would think I’d be used to it by now. I seem to spend most of my life at the doctor’s office. Whether it’s my primary care physician, my allergist, my rheumy or my OBGYN (I’ve seen them all in the last 3 weeks). This last visit yesterday has left me a little frustrated though.
Not only am I having lung problems right now, but was diagnosed with a UTI last night (UGH!) … and then some. Basically, my infection is not just in my bladder, but it has spread into my fallopian tubes too. (sorry guys who are reading this – you won’t hurt my feelings if you quit reading here.)
Good news — I am no longer exhausted.
Bad news — I’m lethargic!!! Almost sloth-like. I am so run down it’s not even funny. I’m certain my immune system is on over-drive. My rheumy upped my dose of Hydroxychloroquine, which suppresses my immune system — therefore making me more susceptible to infection (hence the UTI.)
I get that my immune system is whacked and works overtime being that it attacks both unhealthy and healthy cells — but I can’t imagine how confused it must be when I have so many unhealthy infections and yet still suppress it. It’s almost like I’m forcing it to not do its job O-o
“Hey you silly little bastard, slow yourself right on down,” I would yell!
“Yeah, so what if that virus, bacteria, or fungus is growing on Allie’s lung/heart/fallopian tubes — you’re such an ignoramus system that you can’t tell whether it’s her healthy cells or the infection — so how’s about you just stop working all together (or at least slow down) so the doctors can give her more drugs to fight the infection instead of depending on your dumb ass to do it!”
If yelling at the immune system doesn’t work … I’ll just physically hold it down.
So that’s your Science lesson for today, haha. I guess I understand why I feel like a sloth – my immune system is automatically on overdrive so I suppress it with drugs, which causes me to get sick, then I’m pumped with antibiotics (had a painful shot in the bum yesterday followed by a strong antibiotic 10-day prescription) in hopes that my immune system will rev back up and do the job that I’m initially suppressing it from doing. Geesh. I get tired just trying to understand it myself.
Today has been ok so far in terms of pain level. My wrists are killing me (no wonder being that I type on a computer all day). My fingers are painful and I have swelling in my wrist. My elbows are throbbing with pain too. Had a horrible headache the last few days that has finally subsided though. My body feels bruised all over (nothing new) and my biggest complaint is this nasty cough, shortness of breath and overall feeling of malaise that comes with autoimmune disorders. Oh – and indigestion that just won’t go away.
My echocardiogram and cat scan are scheduled for Tuesday. I’m pretty anxious for those results! I’m also getting a bunch of blood drawn and I’m anxious to know what my ANA level is and my Anti-U1 RNP antibodies.
Until then, I’ll continue working, going to school and being a mom to those two boys I’m so crazy about (even with all the teenaged angst).
I’m hoping this last two doses of antibiotics (the shot that was the consistency of baby oil and the pills) will actually help with the lung and bronchial problems I’m having too — not just the female junk.
And for fun (yes, I sometimes try to have that still) – I have a girl’s night coming up on Friday. A nice steak dinner in downtown Atlanta. I have promised myself I’m going — lethargic or not!! I don’t get out enough!!!
I’ll update soon – until then friends,