Yet another diagnosis

“Life is far too important a thing ever to talk seriously about. ” ~ Oscar Wilde

One of my favorite authors (Oscar Wilde) said that life is far too important a thing to ever talk seriously about. I would venture to say that he believed there were enough troubles in living — why sit around and talk about them when there is such a multitude. I agree.

I’m 35 years young and living with about six (combined) autoimmune disorders. Some days are fine, others I feel like I’m 90-years-old. Today is one of those 90(ish) days. I contracted a pretty severe bout of Bronchitis close to two months ago. I’m still not better. That’s the joy (haven’t discovered that sarcasm font yet) of my Mixed Connective Tissue Disease (MCTD).

For those of you who have it, I feel your pain. For those of you who don’t, count your blessings — and for those of you who don’t know what it is — see the link above. Basically, it’s considered an overlapping autoimmune disorder since it involves three, sometimes more, autoimmune diseases. Those diseases include lupus, scleroderma and polymyositis. Mixed connective tissue disease also may have features of rheumatoid arthritis.

An autoimmune disease basically means the body’s immune system attacks healthy tissues because it mistakes it as intruders. MCTD in particular attacks the tissues that hold your body together.

Personally, I have MCTD (lupus, scleroderma and polymyositis — with predominate Lupus), Palindromic Rheumatism (IPRS), Hashimoto’s disease (Thyroid) and Celiac Disease. To top it off, I also recently (about two years ago) developed a severe life-threatening allergy to wheat, great.

And now, today — after two months going back and forth to doctors with Bronchitis, breathing attacks that leave me in tears and throwing up (out my nose sometimes) — I was officially diagnosed with adult onset Asthma. My lung function is 50% what it was three years ago when I was tested.

Apparently, lung disease is pretty common in people with MCTD. Doctors failed to share this information with me when I was diagnosed about a year ago. My allergist said that my immune system has either attacked the outside of my lungs or airways, compressing them and making it harder to breath. It makes since. I get sick, my immune system responds, but not only does it attack the infection or Bronchitis – it continues to attack my healthy lung and bronchial tissue.

I started new meds today too. (Now I’m on about four medications a day). Hopefully this will help me to slowly get better and end this cycle of coughing (due to raw throat), throat closing up (gagging me), throwing up, causing raw throat and so on.

And I will now be seeing my allergist on a regular basis. I still have to go see my rheumatologist soon to let them know what’s going on.

So yes – Oscar Wilde was correct. Life is full of difficult and important things. So as to not complain and talk my friends’ and families’ ears off about it … I decided to start this blog. I’m hoping it not only helps me to understand these diseases better, but others too.

And for those of you that suffer with me, don’t give up. Keep truckin. And join support groups and other people who suffer with the same ailments. Because life is too short to not understand and enjoy and accept the thorns in our side. There is a reason for everything. I’ll let you know when I find out the reason for autoimmune diseases!

Until next time,

Allie

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About Imkjac

I love my work. I also love the following things: God, my boys, my family, dogs, cats, writing, photography, reading (a bit of a lit geek actually), cooking, being outdoors, hiking, fishing, film, music, Spotify, beards, tattoos, board games, TV (also a TV geek), Netflix, pajamas, antiquing, interior decorating (DIY), blankets, polar bears, art, food. I dislike these things: elevators, heights, unclear water, bridges. Thanks for reading my blog and hoping it brings some comfort and joy to others.
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4 Responses to Yet another diagnosis

  1. Jessi Stone says:

    Damn Allie – I had no idea you were suffering with all of that! I don’t know how you do it and keep up with your two growing boys! You have one of the most positive attitudes and sunniest dispositions of anyone I’ve ever met. Stay strong.

  2. marilyn says:

    Allie,I wish I had a magic potion to cure you .
    I truly hate that you going through so much ,.you can always count on me to be there if you
    need to vent,talk or just hand out and watch TrueBlood,..BTW the new Trueblood season is starting in June,my home is always open for you.

  3. Tracie Ryall says:

    I had no idea you were dealing with so much! I love you Allie!!!

  4. Tammy says:

    Hi Alllie, thanks for visiting my blog. I, too, was diagnosed with MCTD. I have been taking Plaquenil since 2007 and got my healthy/life back. I wish that medication could help you like it has helped me. I also changed my diet last year and that has helped even more. I stick to a plant based diet, and the only dairy I eat is cheese, but very little. After I read The China Study, it caused me to change the way I view food and my health. I believe that the foods we eat can interact with our bodies and cause inflammatory reactions and diseases. I passionate about my new view of things, but I won’t overwhelm you here. If you’d like to know more, please email me. I just want you to know that I thought there was no hope for me, but now I’m a new person and I’m so thankful. 🙂

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